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Email us : info@palliativecare.ie

Children’s Palliative Care Group

The IAPC Children’s Palliative Care Subgroup is a multidisciplinary group, representative of all the service providers of children’s palliative care.

The Group addresses paediatric palliative care which is focused on achieving the best possible quality of life for children with life-limiting and life-threatening conditions and their families.

Role: The role of the Group is to be:

  • a learning network – actively promoting the application of best practice in all aspects of children’s palliative care through the sharing of knowledge, learning, experience, skills and practice in relation to the care of children with life-limiting and life-threatening conditions
  • a source of information and data on the provision of services related to children’s palliative care on the island of Ireland
  • an expert advisory group to the IAPC Board on key issues relating to the developing specialty of children’s palliative care, including service provision and policy development, implementation and monitoring)

 

Workplan: 

  • Project Specific and for Consultation and Feedback to National Guidelines as the need arises
  • Development of Guide – What is Children’s Palliative Care.

 

Members: Elizabeth O’Donoghue (Chairperson), Clinical Nurse Specialist, Our Lady’s Children’s Hospital, Dublin

AnneMarie Carroll, Director of Nursing, LauraLynn Children’s Hospice, Dublin

Dr Mary Devins, Consultant Paediatrician with a special interest in Paediatric Palliative Medicine, Our Lady’s Children’s Hospital, Dublin

Colette Goonan, OutReach Nurse, Galway University Hospital

Imelda Hurley, Clinical Nurse Specialist, Our Lady’s Children’s Hospital, Dublin

Cecilia McGarry, LauraLynn Children’s Hospice, Dublin

Claire Quinn, Lecturer/Programme Director, NUI Galway

Bevan Ritchie, TeamLeader, LauraLynn at Home, LauraLynn Hospice, Dublin

 

 

The Role of the OutReach Nurse in Children’s Palliative Care –

 

Links to Further Resources and Information:

Children’s Palliative Care: From Policy to Practice 2010-2015 Children’s Palliative Care From Policy to Practice 2010-2015

Palliative Care for Children with Life-Limiting Conditions – A National Policy 2010 Palliative Care for Children with Life-Limiting Conditions in Ireland

Respite Services for Children with Life-Limiting Conditions and the Families in Ireland 2013 RESPITE-SERVICES-FOR-CHILDREN-WITH-LIFE-LIMITING-CONDITIONS-IN-IRELAND-A-NATIONAL-NEEDS-ASSESSMENT

Palliative Care Needs Assessment for Children 2005 A Palliaitve Care Needs Assessment for Children

AIIHPC Palliative Hub – Children and Young People http://www.childrenspalliativehub.com/